Highdown Rotary BM Bike Ride for Eva Rose Trust

On Sunday 19th April 2020 4 members of Highdown rotary will completing the
BM Ride 50K (31 Miles)- On Sunday 19th April 2020 they will be taking to their
bikes to take part in the 50K ride around Brighton as part of their Marathon Weekend.

They will be riding in support of and to raise awareness of The Eva Rose Trust.

What is the Eva Rose Trust:
Lou and Tom set up a trust in memory of their daughter, Eva Rose. Their twin girls, Eva Rose and Una Mae were born 12 weeks early at just 28 wks +1 gestation. Tragically, at just 4 1/2 weeks old, Eva developed NEC. After various medication and two surgical procedures, sadly there was little that could be done for Eva and she passed away on 19th March 2017.

Their Mission:
-To provide support to families who are currently experiencing life with a premature baby(ies) in Special Care and families who have experienced losing a baby(ies) due to prematurity and in some cases specifically Necrotising Enterocolitis (NEC).
-To work with the NHS and NICU, SCBU and LNC units to ensure there is consistency in practice when diagnosing, treating and preventing NEC and to educate in areas of need.
-To carry out and fund research into NEC, collaborating with other organisations and medical professionals in the aim of eradicating NEC.

Through this, they will raise awareness of Prematurity, NEC and the reality of living through these experiences. We strive to make babyloss no longer a taboo.

The Eva rose trusts Vision: Research, Educate, Support

Research:
Fund research into NEC
Utilise existing research to improve practice
Collaborate with organisations to further the understanding of NEC
Run surveys to improve the understanding of experiences, practice, and support available.

Educate:
Understand current practice across Hospital Trusts.
Identify inconsistencies in diagnosis, treatment and outcomes.
Identify level of support given to families throughout care.
Identify information provided to families about NEC and timescale.
Provide Education opportunities to NICU, SCBU and LNC units and all staff within.

Support:
Identify breadth of support needed.
Tailor support to individual family needs.
Provide families with children living with NEC with information and support.
Provide families who have lost a child(ren) to NEC with support.
Provide information about NEC to existing families on units prior to NEC.

If you would like to support me and the Eva Rose trust, please donate ERT BM

Thank you in advance, for your support.