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Our First Fundraiser for Prader-Willi Syndrome Association (PWSA) December 2021

Raising funds for PWSA at an Xmas Charity Market


 

Our first Fundraising event for PWSA

 

 

We raised £245 towards the work of this great charity

 
 
 
 
 
 
 
 

What is PWS?

 
 
Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. It causes low muscle tone with consequent motor developmental delays, a mild to moderate learning difficulty, incomplete sexual development, and emotional and social immaturity, which can lead to challenging behaviours. During childhood, an overwhelming and insatiable chronic appetite usually develops which, without rigorous food management and exercise regimes, leads to food seeking, stealing and life threatening obesity. PWS occurs randomly in about 1:22,000 births and it is estimated that there are about 2,000 living with PWS in the UK.
 

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Volunteering Opportunities

back Raising money by holding events and volunteering our services to support local, national and international charities Check out the sub-pages about past individual events Check out the Future Meetings & Events page for upcoming events