Club President Richard Lindo and Club Secretary Leigh Welham handed a cheque for £1500 to DEBRA.
DEBRA is a national charity and patient support group for people living with the rare, extremely painful, genetic skin blistering condition, Epidermolysis Bullosa (EB) also known as ‘Butterfly Skin’. EB causes the skin to become very fragile and tear or blister at the slightest touch. With your help we can find treatments and cure(s) for EB.
A cheque was presented Club President Richard Lindo and Club Secretry Leigh Welham.
At the presentaion they were thanked by Jenny Jackson, Deputy Director of Fundraising, at Debra.
Richard commented on the videos they were shown saying "it's emotional but worthwhile watching and good to know our donation is in a small way going toward the efforts for those suffering to be one day able to a live a life free of pain". "There is further opportunity for us to organise good quality clothes collections from our and other Rotary Clubs for DEBRA's charity shops."
https://www.debra.org.uk/what-is-ebThe video shown is Isla's story on You Tube narrated by Graeme Souness VP DEBRA which shows what a debilitating and painful condition EB (Epidermolysis Bullosa ) is.
Hi Richard and Leigh,
A massive thank you to everyone in the Rotary club of Crowthorne, Sandhurst and Bracknell for your generous donation of £1,500.
We will put this to good use supporting people living with EB.
What is drug repurposing? - YouTube
A Life Free of Pain - Isla's Story - YouTube
If there is anything else please let me know.
Have a lovely Easter and thanks again
Deputy Director of Fundraising.
For more information on DEBRA click on the image below