MPS Society

A talk by Bob Stevens, group CEO of the Society


MPS Society – talk by Bob Stevens, Group CEO

6th December 2023

 

Founded in 1982 and based in Amersham, the MPS Society supports individuals affected by 27 rare lysosomal storage diseases. The lysosomes are the ‘recycling centres’ of the cells and there is usually a continuous process of the body replacing used materials and breaking them down for disposal. In these disorders, there is a deficiency of a particular enzyme and waste products are not broken down resulting in progressive damage to the cells. The diseases are rare and there are no cures. Enzyme replacement therapy has been developed but is not a cure.

The society works to ensure that their community receives support and advice, world class clinical care and treatments. It has also established a research arm and is a reference point for clinicians worldwide. It receives no public funding and relies on grant income and donations to fund its activities.

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